My name is Klair Bayley
In 2001 our second child was born a beautiful healthy baby boy Logan. A little brother for Olivia then 3 and a half.
As the years went by and our family planned for the future Logan began to display symptoms that were to change our lives forever. We did not notice the subtle signs, we weren't looking for them. In February 2007 our 3rd child was born Flynn another healthy boy. Our growing family were not prepared for the devastation that lay ahead later that year. In September 2007 Logan aged 5 years 11 months was diagnosed with Duchenne muscular dystrophy.
Duchenne is a fatal, progressive, degenerative muscle wasting condition that takes away functions like the ability to walk and run. We were told by 10 Logan would no longer be able to walk. At 14 he would slowly lose the ability to use his arms. So as his peers gain their independence heading into High school Logan would be losing his. As if this devastation was hard enough, the reality sank in, every muscle would be affected. His lungs, his diaphragm and his heart.
Boys with Duchenne have a life expectancy of mid 20's. We had to prepare ourselves for a future with a child that would slowly slip away from us and we were helpless to help him. Our world as we knew it ended that day. We were told to enjoy Logan while we could! That there was no cure and no treatments.
After the diagnosis it felt surreal, Logan was still running around and we were grieving for things he had not yet lost. Grief becomes consuming. You feel selfish, jealous of the simple things friends took for granted with their boys, footy, soccer, bike rides.
Logan is now 15. He has lost the ability to walk in the last 12 months. Logan has made us appreciate the things we take for granted, he has made us challenge our beliefs and live for the now ! Enjoy life ! Make memories. So I am walking for Logan and every boy and rare girl with Duchenne.
I will do what ever it takes to change the Duchenne journey, improve the quality and length of life for those living with Duchenne and find a cure.
I am very proud to announce to be taking part in The ‘Walk to Save Our Sons’ 2017, walking from Victoria Market to Melbourne CBD 300km 'Around The Bay'. Along with our National Partner Chemist Warehouse. It will challenge me not only physically but challenge my head and my heart. To get up everyday and walk is something Logan cannot do.
All proceeds will help us fund much needed Duchenne Nurses in children’s hospitals around Australia, enhancing the quality of life of those living with Duchenne, and funding new clinical trials & scientific research.
I won't let Duchenne take my son without putting up the fight of my life.
Every km of the 300km walk, every breath for every boy and girl with Duchenne.
Please help me and the team by donating through the "Give Now" link.